OK, so we have spent the last month going through the roller coaster of emotions, the "why us" syndrome, feeling sorry for ourselves, figuring out how to not make other people uncomfortable with our situation, enraged, getting educated, ready to mobilize, fight, hating Bush for setting back stem cell research, the list goes on and on.
Support from our family and friends has been absolutely incredible. Thanks to everyone for everything. Took the kids on a wonderful family vacation to the beach and Disneyland (Thanks Dave and Mia) and spent a little time enjoying life.
Now, its time to get rolling. We know what Jake has, and now its time to learn and get into action mode (oh yea, i have to run a start up company too, and Allison has to take care of the kids) Thankfully, we are lucky to have the Parent Project for Muscular Dystrophy bringing all the major researchers and important people for MD all to Colorado tomorrow. I plan on learning a lot more and talking to some of the world's best minds on the issue. We are lucky to have this going on right here in my back yard at this time.
So we have started the process of mobilizing the troops. We are in the process of setting up our foundation, which will support research, education, awareness, and treatment for Muscular Dystrophy and Down Syndrome. We are applying for 501(c)3 non-profit status, so we will soon have the vehicle to raise money to support our causes. more on that later.
So, for everyone who has generously offered to donate money, just give us a little time to get this going, and we will gladly take it and put it to good use
Comments